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I have been updating my book recommendations on my website, and would love your input.
What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
I have been updating my book recommendations on my website, and would love your input.
What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(70) "http://www.5minutesforspecialneeds.com/4440/what-are-you-reading/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "0" } ["summary"]=> string(340) "I have been updating my book recommendations on my website, and would love your input. What are you reading? I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night! Here are a few of my [...]" ["atom_content"]=> string(4990) "I have been updating my book recommendations on my website, and would love your input.
What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
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What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(70) "http://www.5minutesforspecialneeds.com/4440/what-are-you-reading/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "0" } ["summary"]=> string(340) "I have been updating my book recommendations on my website, and would love your input. What are you reading? I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night! Here are a few of my [...]" ["atom_content"]=> string(4990) "I have been updating my book recommendations on my website, and would love your input.
What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
" } [1]=> array(13) { ["title"]=> string(11) "Help Wanted" ["link"]=> string(56) "http://www.5minutesforspecialneeds.com/4435/help-wanted/" ["comments"]=> string(65) "http://www.5minutesforspecialneeds.com/4435/help-wanted/#comments" ["pubdate"]=> string(31) "Thu, 29 Jul 2010 06:22:48 +0000" ["dc"]=> array(1) { ["creator"]=> string(5) "Janis" } ["category"]=> string(16) "BlogThis Just In" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4435" ["description"]=> string(355) "Complex –adjective 1. composed of many interconnected parts; compound; composite: a complex highway system. 2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery. 3. so complicated or intricate as to be hard to understand or deal with: a complex problem. A friend of mine mentioned to me the other [...]" ["content"]=> array(1) { ["encoded"]=> string(5053) "Complex
–adjective
1. composed of many interconnected parts; compound; composite: a complex highway system.
2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery.
3. so complicated or intricate as to be hard to understand or deal with: a complex problem.
A friend of mine mentioned to me the other day that it’s possible to hire an intern to help me with my business, my blog…whatever I might need. So I got to thinking … forget my blog, what would I use an intern for in my home life? That’s where I could use some help.
Can I teach someone else to do what I do? Every.Day.
How on Earth could an outsider even begin to understand the complexity of my life? Let alone organize it.
Ah, but wouldn’t it be nice…
This could be a good thing, this intern idea.
I wouldn’t need to clone myself after all. I could just be available for the cuddles and kisses, and you know and all the fun stuff. I could leave the eye rolling and the head scratching to the intern.
Anyone else interested in an intern? What would you have them do for you?
" } ["wfw"]=> array(1) { ["commentrss"]=> string(61) "http://www.5minutesforspecialneeds.com/4435/help-wanted/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "4" } ["summary"]=> string(355) "Complex –adjective 1. composed of many interconnected parts; compound; composite: a complex highway system. 2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery. 3. so complicated or intricate as to be hard to understand or deal with: a complex problem. A friend of mine mentioned to me the other [...]" ["atom_content"]=> string(5053) "Complex
–adjective
1. composed of many interconnected parts; compound; composite: a complex highway system.
2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery.
3. so complicated or intricate as to be hard to understand or deal with: a complex problem.
A friend of mine mentioned to me the other day that it’s possible to hire an intern to help me with my business, my blog…whatever I might need. So I got to thinking … forget my blog, what would I use an intern for in my home life? That’s where I could use some help.
Can I teach someone else to do what I do? Every.Day.
How on Earth could an outsider even begin to understand the complexity of my life? Let alone organize it.
Ah, but wouldn’t it be nice…
This could be a good thing, this intern idea.
I wouldn’t need to clone myself after all. I could just be available for the cuddles and kisses, and you know and all the fun stuff. I could leave the eye rolling and the head scratching to the intern.
Anyone else interested in an intern? What would you have them do for you?
" } [2]=> array(13) { ["title"]=> string(15) "Blooming Things" ["link"]=> string(60) "http://www.5minutesforspecialneeds.com/4212/blooming-things/" ["comments"]=> string(69) "http://www.5minutesforspecialneeds.com/4212/blooming-things/#comments" ["pubdate"]=> string(31) "Wed, 28 Jul 2010 20:00:14 +0000" ["dc"]=> array(1) { ["creator"]=> string(7) "Deborah" } ["category"]=> string(17) "BlogDeborahFamily" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4212" ["description"]=> string(308) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I [...]" ["content"]=> array(1) { ["encoded"]=> string(6255) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I watered and fed and clipped and snipped and generally did everything I could to help them endure the stress of the hot summer. It dawned on me that I do the same things for my children.

I make sure my children have plenty of food and water, and I make sure it is the right kind of food to help them grow healthy and strong. I snip and clip their environment to make it safe as well as fun. I make sure they get the right amount of sunshine and also darkness for rest. I even mist them occasionally in the sprinkler! While the hot, dry summer stresses my plants, the many doctor and therapy visits, the segregation by schools and recreation programs, the stares and hurtful comments stress my kids. I do all I can to reduce the stress for my plants by tending to their needs, and I do all I can to reduce the stress for my kids by fighting the battles for appropriate educations, appropriate medical services, and inclusion in society.
Ashley is my honeysuckle vine. She grows wildly and moves around to wherever she would like to be. Trying to contain her is wasted effort. Like the vine with its brilliant red blossoms, Ashley’s smile and laugh announce her presence to the world.
Jessica is my rubekia flower(black eyed susans). She will stay in one spot for quite a while but ever so slowly will move out of her perimeter. Like the flowers, she is bright and showy, announcing to the world her happiness.
Corey is my cactus plant. He grows ever so slowly and can at times be quite prickly. But like the cactus to a stranded desert traveler, his inside holds nourishment for the soul. Getting to that center is often difficult though.
Chip is the huge red maple that shades the front of our house. He is steady and grounded, strong but ready at a moment’s notice for fun, as is the tree which welcomes a climbing child. Different seasons bring different visions of his color and personality.
Ronnie is my forsythia bush. No matter how people have tried to define and contain him throughout his life, he grows wild and free. His smile is as bright as the yellow flowers that announce the Spring, and like the brillaint green foliage of the forsythia’s summer, Ronnie flourishes despite all the medical setbacks in his life.
I am so blessed that I have been given the opportunity to nurture my special children and to watch them grow and bloom. The beautiful, strong flowers and plants in my yard stand as representatives to the value of tending things wild – be they honeysuckle vines or children!
Deborah can be found writing here at 5MFSN every Wednesday, and can also be found at Pipecleaner Dreams.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(65) "http://www.5minutesforspecialneeds.com/4212/blooming-things/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(308) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I [...]" ["atom_content"]=> string(6255) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I watered and fed and clipped and snipped and generally did everything I could to help them endure the stress of the hot summer. It dawned on me that I do the same things for my children.

I make sure my children have plenty of food and water, and I make sure it is the right kind of food to help them grow healthy and strong. I snip and clip their environment to make it safe as well as fun. I make sure they get the right amount of sunshine and also darkness for rest. I even mist them occasionally in the sprinkler! While the hot, dry summer stresses my plants, the many doctor and therapy visits, the segregation by schools and recreation programs, the stares and hurtful comments stress my kids. I do all I can to reduce the stress for my plants by tending to their needs, and I do all I can to reduce the stress for my kids by fighting the battles for appropriate educations, appropriate medical services, and inclusion in society.
Ashley is my honeysuckle vine. She grows wildly and moves around to wherever she would like to be. Trying to contain her is wasted effort. Like the vine with its brilliant red blossoms, Ashley’s smile and laugh announce her presence to the world.
Jessica is my rubekia flower(black eyed susans). She will stay in one spot for quite a while but ever so slowly will move out of her perimeter. Like the flowers, she is bright and showy, announcing to the world her happiness.
Corey is my cactus plant. He grows ever so slowly and can at times be quite prickly. But like the cactus to a stranded desert traveler, his inside holds nourishment for the soul. Getting to that center is often difficult though.
Chip is the huge red maple that shades the front of our house. He is steady and grounded, strong but ready at a moment’s notice for fun, as is the tree which welcomes a climbing child. Different seasons bring different visions of his color and personality.
Ronnie is my forsythia bush. No matter how people have tried to define and contain him throughout his life, he grows wild and free. His smile is as bright as the yellow flowers that announce the Spring, and like the brillaint green foliage of the forsythia’s summer, Ronnie flourishes despite all the medical setbacks in his life.
I am so blessed that I have been given the opportunity to nurture my special children and to watch them grow and bloom. The beautiful, strong flowers and plants in my yard stand as representatives to the value of tending things wild – be they honeysuckle vines or children!
Deborah can be found writing here at 5MFSN every Wednesday, and can also be found at Pipecleaner Dreams.
" } [3]=> array(13) { ["title"]=> string(27) "Special Exposure Wednesday." ["link"]=> string(74) "http://www.5minutesforspecialneeds.com/4427/special-exposure-wednesday-45/" ["comments"]=> string(83) "http://www.5minutesforspecialneeds.com/4427/special-exposure-wednesday-45/#comments" ["pubdate"]=> string(31) "Wed, 28 Jul 2010 09:02:40 +0000" ["dc"]=> array(1) { ["creator"]=> string(10) "TiffandIvy" } ["category"]=> string(45) "BlogSpecial Exposure WednesdayTiffphotography" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4427" ["description"]=> string(348) "This week has been full to overflowing with port trouble. Hope your week has been better. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus. Tweet This! Share this on Facebook Stumble upon something good? Share it [...]" ["content"]=> array(1) { ["encoded"]=> string(3820) "
This week has been full to overflowing with port trouble.
Hope your week has been better.
Got something to share?
Why don’t you join in this Special Exposure Wednesday.
Please remember your comment love at each link you visit.
Also posting at Three Ring Circus.

This week has been full to overflowing with port trouble.
Hope your week has been better.
Got something to share?
Why don’t you join in this Special Exposure Wednesday.
Please remember your comment love at each link you visit.
Also posting at Three Ring Circus.
When your kids a beyond the norm, you have to adapt. There is the obvious rigorous schedule of meds, therapy, stretching, speech exercises, feedings and freak out. But there is more.
Over the years, I have noticed that parents of kids with special needs have a common thread with another part of our society. I have known many cops, emergency room personnel, even a couple of medical examiners. We all have a similar sense of humor. There are so many dark words outsiders describe it. Morbid, saturnine, lugubrious. I call it coping.
It’s something that you keep amongst others in your circle of other parents in your situation. We keep the joking about her getting her driver’s license before potty training to the waiting rooms of physical therapy and other “safe” places.
Not long ago I was met with a poor response when I posted this photos on Facebook. I found the caption humorous. We have been struggling with Bear’s weight for years. Her lack of body fat gives her a pale complexion that doesn’t photograph well in most lighting. The look on her face was funny.

She keep me up at all hours and it makes me feel like a zombie. The kid will eat everything put her way and not gain a single ounce. I walk around in a daze. Maybe a change of diet will help us avoid time in the nutritionist clinic. I shrugged off the remarks made on the photo and moved on.
If we can’t find humor in something in our off-the-wall lives, we’ll crumble.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(76) "http://www.5minutesforspecialneeds.com/4423/a-different-sense-of-humor/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "5" } ["summary"]=> string(316) "When your kids a beyond the norm, you have to adapt. There is the obvious rigorous schedule of meds, therapy, stretching, speech exercises, feedings and freak out. But there is more. Over the years, I have noticed that parents of kids with special needs have a common thread with another part of our society. I [...]" ["atom_content"]=> string(4484) "When your kids a beyond the norm, you have to adapt. There is the obvious rigorous schedule of meds, therapy, stretching, speech exercises, feedings and freak out. But there is more.
Over the years, I have noticed that parents of kids with special needs have a common thread with another part of our society. I have known many cops, emergency room personnel, even a couple of medical examiners. We all have a similar sense of humor. There are so many dark words outsiders describe it. Morbid, saturnine, lugubrious. I call it coping.
It’s something that you keep amongst others in your circle of other parents in your situation. We keep the joking about her getting her driver’s license before potty training to the waiting rooms of physical therapy and other “safe” places.
Not long ago I was met with a poor response when I posted this photos on Facebook. I found the caption humorous. We have been struggling with Bear’s weight for years. Her lack of body fat gives her a pale complexion that doesn’t photograph well in most lighting. The look on her face was funny.

She keep me up at all hours and it makes me feel like a zombie. The kid will eat everything put her way and not gain a single ounce. I walk around in a daze. Maybe a change of diet will help us avoid time in the nutritionist clinic. I shrugged off the remarks made on the photo and moved on.
If we can’t find humor in something in our off-the-wall lives, we’ll crumble.
" } [5]=> array(13) { ["title"]=> string(39) "Every month?.or when the time is right." ["link"]=> string(82) "http://www.5minutesforspecialneeds.com/4411/every-month-or-when-the-time-is-right/" ["comments"]=> string(91) "http://www.5minutesforspecialneeds.com/4411/every-month-or-when-the-time-is-right/#comments" ["pubdate"]=> string(31) "Tue, 27 Jul 2010 04:07:16 +0000" ["dc"]=> array(1) { ["creator"]=> string(16) "Tammy and Parker" } ["category"]=> string(45) "Tammyblood drawsBNPdown syndromespecial needs" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4411" ["description"]=> string(323) "Each month it goes something like this: Hmmm….I need to get Parker’s montly bloodwork drawn. All one zillion and one bottles pulled for the zillion and two different tests. The liver function panel. The Thyroid. The CBC The tests to see if the statin Parker is on is breaking down his muscle mass. But the [...]" ["content"]=> array(1) { ["encoded"]=> string(6592) "Each month it goes something like this:
Hmmm….I need to get Parker’s montly bloodwork drawn.
All one zillion and one bottles pulled for the zillion and two different tests.
The liver function panel.
The Thyroid.
The CBC
The tests to see if the statin Parker is on is breaking down his muscle mass.
But the one the strikes terror in this Mama’s heart is the BNP. (B-type-Natriuretic Peptide) This lets us know if Parker’s heart is working harder than it should be.
Anything under 100 is considered normal. (Parker’s BNP was once in the 1300′s ! )
But I don’t want normal. I want “Hot Damn!” The BNP came back looking GREAT and now I can be happy the rest of the month.
Yeah. You read that right.
One blood test can set the tone for my whole month. What can I say? We all have our weird and this is some of mine. I have yet to learn how to not freak out….uh….worry a bit.
This is such an issue with me that I have been known to go to rather OCD levels to make sure we achieve the most opportune blood draw experience possible.
Because being just a tad bit sick can throw off BNP results.
Or if Parker is crying during the actual blood draw, that too can muck up the final numbers.
We just got back from Parker’s latest blood draw about 30 minutes ago. I really should have had this done last week, but Parker’s sleeping heart rate was higher than it should have been (most likely due to the constant aspirating he’s doing with his saliva) and so I waited until today.
Today, I thought, the time is right.
When I saw who was on duty at the lab, I almost turned around and came home. We have certain ‘lucky’ lab techs that hit the motherlode the first stick. Parker trusts these two techs. We’ve never had today’s tech and I wasn’t sure if I should take the chance…..or just come back another day.
So here I sit. Waiting for the cardiologist to call back with the results. It will mostly likely be tomorrow or the next day before he calls.
Which gives me lots of time to assume the worst.
Yup. Just call me Dame Doom.
To help me bide this time, and take my mind off things, how about sharing with me things YOU dread having to deal with when it comes to your kid with special needs.
And how do you deal with it?
Update: Dr. Heart just called. Parker’s BNP just came back at 18. EIGHTEEN! woot! That is excellent.
Dr. Heart gave me all of 20 seconds to rejoice before mentioning that he’d really like to get Parker back in the cath lab soon.
Crap. Heart caths require lots and lots of Valium.
For me.
Well, I guess 20 seconds of Happy Dancing is better than none at all. I’ll take it!
Tammy and Parker can also be found hanging out at their other blog, Praying for Parker where they dish about what’s it’s like to raise a special needs kid in a typical world. They also spend time on Twitter where they are known as @ParkerMama.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(87) "http://www.5minutesforspecialneeds.com/4411/every-month-or-when-the-time-is-right/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(323) "Each month it goes something like this: Hmmm….I need to get Parker’s montly bloodwork drawn. All one zillion and one bottles pulled for the zillion and two different tests. The liver function panel. The Thyroid. The CBC The tests to see if the statin Parker is on is breaking down his muscle mass. But the [...]" ["atom_content"]=> string(6592) "Each month it goes something like this:
Hmmm….I need to get Parker’s montly bloodwork drawn.
All one zillion and one bottles pulled for the zillion and two different tests.
The liver function panel.
The Thyroid.
The CBC
The tests to see if the statin Parker is on is breaking down his muscle mass.
But the one the strikes terror in this Mama’s heart is the BNP. (B-type-Natriuretic Peptide) This lets us know if Parker’s heart is working harder than it should be.
Anything under 100 is considered normal. (Parker’s BNP was once in the 1300′s ! )
But I don’t want normal. I want “Hot Damn!” The BNP came back looking GREAT and now I can be happy the rest of the month.
Yeah. You read that right.
One blood test can set the tone for my whole month. What can I say? We all have our weird and this is some of mine. I have yet to learn how to not freak out….uh….worry a bit.
This is such an issue with me that I have been known to go to rather OCD levels to make sure we achieve the most opportune blood draw experience possible.
Because being just a tad bit sick can throw off BNP results.
Or if Parker is crying during the actual blood draw, that too can muck up the final numbers.
We just got back from Parker’s latest blood draw about 30 minutes ago. I really should have had this done last week, but Parker’s sleeping heart rate was higher than it should have been (most likely due to the constant aspirating he’s doing with his saliva) and so I waited until today.
Today, I thought, the time is right.
When I saw who was on duty at the lab, I almost turned around and came home. We have certain ‘lucky’ lab techs that hit the motherlode the first stick. Parker trusts these two techs. We’ve never had today’s tech and I wasn’t sure if I should take the chance…..or just come back another day.
So here I sit. Waiting for the cardiologist to call back with the results. It will mostly likely be tomorrow or the next day before he calls.
Which gives me lots of time to assume the worst.
Yup. Just call me Dame Doom.
To help me bide this time, and take my mind off things, how about sharing with me things YOU dread having to deal with when it comes to your kid with special needs.
And how do you deal with it?
Update: Dr. Heart just called. Parker’s BNP just came back at 18. EIGHTEEN! woot! That is excellent.
Dr. Heart gave me all of 20 seconds to rejoice before mentioning that he’d really like to get Parker back in the cath lab soon.
Crap. Heart caths require lots and lots of Valium.
For me.
Well, I guess 20 seconds of Happy Dancing is better than none at all. I’ll take it!
Tammy and Parker can also be found hanging out at their other blog, Praying for Parker where they dish about what’s it’s like to raise a special needs kid in a typical world. They also spend time on Twitter where they are known as @ParkerMama.
" } [6]=> array(13) { ["title"]=> string(13) "Oh, happy day" ["link"]=> string(57) "http://www.5minutesforspecialneeds.com/4393/oh-happy-day/" ["comments"]=> string(66) "http://www.5minutesforspecialneeds.com/4393/oh-happy-day/#comments" ["pubdate"]=> string(31) "Mon, 26 Jul 2010 16:00:58 +0000" ["dc"]=> array(1) { ["creator"]=> string(8) "Ellen S." } ["category"]=> string(4) "Blog" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4393" ["description"]=> string(297) "Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I [...]" ["content"]=> array(1) { ["encoded"]=> string(4640) "
Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I think he would have gladly slept there, right in the lounge. Or in the car. Or on a deck chair. It wouldn’t have mattered to him.
We try not to center our excursions around Max’s sensitivities and needs, because if we did we’d end up at the same places again and again—he likes familiarity. But exposing him to new places is good for growing his intelligence, and keeping ourselves sane. It also means every outing is a crap shoot, as we’re never sure how Max will respond. Typically, initially he’s scared. When he first saw the ferry, he shook his head “no” and looked petrified. Then we coasted onto the boat and within minutes, he was trotting around everywhere.
We’ve learned, over the years, that it helps to get to places early before they fill up; it’s easier for Max to adjust when it’s quiet.
Sometimes, though, there’s no getting past the discomfort. We took him to a pro-league baseball game not long ago, and he just hated it. He cried and cried. Nothing would console him, not even the promise of ice-cream or a free softball someone gave us. We had to leave early.
How do your kids typically respond when you take them to new places? Have you learned any tricks over the years for helping them adjust?
Ellen blogs daily at Love That Max
" } ["wfw"]=> array(1) { ["commentrss"]=> string(62) "http://www.5minutesforspecialneeds.com/4393/oh-happy-day/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(297) "Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I [...]" ["atom_content"]=> string(4640) "
Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I think he would have gladly slept there, right in the lounge. Or in the car. Or on a deck chair. It wouldn’t have mattered to him.
We try not to center our excursions around Max’s sensitivities and needs, because if we did we’d end up at the same places again and again—he likes familiarity. But exposing him to new places is good for growing his intelligence, and keeping ourselves sane. It also means every outing is a crap shoot, as we’re never sure how Max will respond. Typically, initially he’s scared. When he first saw the ferry, he shook his head “no” and looked petrified. Then we coasted onto the boat and within minutes, he was trotting around everywhere.
We’ve learned, over the years, that it helps to get to places early before they fill up; it’s easier for Max to adjust when it’s quiet.
Sometimes, though, there’s no getting past the discomfort. We took him to a pro-league baseball game not long ago, and he just hated it. He cried and cried. Nothing would console him, not even the promise of ice-cream or a free softball someone gave us. We had to leave early.
How do your kids typically respond when you take them to new places? Have you learned any tricks over the years for helping them adjust?
Ellen blogs daily at Love That Max
" } [7]=> array(13) { ["title"]=> string(34) "Magic Marker Monday ? Doodle Bugs?" ["link"]=> string(76) "http://www.5minutesforspecialneeds.com/4164/magic-marker-monday-doodle-bugs/" ["comments"]=> string(85) "http://www.5minutesforspecialneeds.com/4164/magic-marker-monday-doodle-bugs/#comments" ["pubdate"]=> string(31) "Sun, 25 Jul 2010 23:00:49 +0000" ["dc"]=> array(1) { ["creator"]=> string(8) "Michelle" } ["category"]=> string(19) "Magic Marker Monday" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4164" ["description"]=> string(328) "“It took me four years to paint like Raphael, but a lifetime to paint like a child.” ~Pablo Picasso Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back… My kid-art smile this week came in the form of a crayon sketch recording the [...]" ["content"]=> array(1) { ["encoded"]=> string(5199) "![]()
“It took me four years to paint like Raphael, but a lifetime to paint like a child.”
~Pablo Picasso
Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back…

My kid-art smile this week came in the form of a crayon sketch recording the sights of a recent nature walk with our 7-year-old:
“Things I have seen. Beetle. I saw this on our walk, dragonfly. I saw this on our walk, butterfly. Ant. Lady bug. Yellow lady bug.”
Don’t you just love summer?
![]()
What has your little artist been up to? Link up and share!
Want the Magic Marker Monday button code? Click Here!
Find out more about Michelle
Meet Michelle here each Monday for Magic Marker Monday
Questions? Please feel free to email Michelle at childlif[at]gmail[dot]com or come and visit her at In The Life of a Child
![]()
“It took me four years to paint like Raphael, but a lifetime to paint like a child.”
~Pablo Picasso
Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back…

My kid-art smile this week came in the form of a crayon sketch recording the sights of a recent nature walk with our 7-year-old:
“Things I have seen. Beetle. I saw this on our walk, dragonfly. I saw this on our walk, butterfly. Ant. Lady bug. Yellow lady bug.”
Don’t you just love summer?
![]()
What has your little artist been up to? Link up and share!
Want the Magic Marker Monday button code? Click Here!
Find out more about Michelle
Meet Michelle here each Monday for Magic Marker Monday
Questions? Please feel free to email Michelle at childlif[at]gmail[dot]com or come and visit her at In The Life of a Child
What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure.
After 3 years of bad news, it’s sometimes hard to find hope. That’s when we ask for prayers and support. Thank you so much for answering our call to arms. Thank you for the prayers you whispered and the hugs (virtual and real) that you sent our way. They mean the world and the Big Guy was listening.
Our appointment with the pediatric bone specialist went far better than I could ever have hoped. No rare disease. No surgery. Not even braces. For once our extraordinary little man falls into the ordinary category–how cool is that?! Aiden is expected to outgrown his little bow legs in a few years and we will simply watch and wait for that to happen! So simple, I love it!
So on this Sunday afternoon, we are again preparing for a trip to Dallas tomorrow. A trip to see Aiden’s pediatric nephrologist (kidney specialist) for his monthly dialysis clinic. But, instead of coming home with my family, this Mama is hopping on a plane to Ohio and a Lilith Fair concert with a good friend! I’m excited, nervous and oh-so-happy that this trip will be made without the additional worry of a new diagnosis or surgery looming in our future.
Today, I’m looking forward to Monday with anticipation, even excitement. What a difference a week can make!
Can’t wait to tell ya all about my trip on next week’s post! In the meantime, check out my recent post at The Mob Society. See ya next week!
" } ["wfw"]=> array(1) { ["commentrss"]=> string(80) "http://www.5minutesforspecialneeds.com/4396/the-difference-a-week-can-make/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(331) "What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure. After 3 years of bad news, it’s sometimes hard [...]" ["atom_content"]=> string(4904) "
What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure.
After 3 years of bad news, it’s sometimes hard to find hope. That’s when we ask for prayers and support. Thank you so much for answering our call to arms. Thank you for the prayers you whispered and the hugs (virtual and real) that you sent our way. They mean the world and the Big Guy was listening.
Our appointment with the pediatric bone specialist went far better than I could ever have hoped. No rare disease. No surgery. Not even braces. For once our extraordinary little man falls into the ordinary category–how cool is that?! Aiden is expected to outgrown his little bow legs in a few years and we will simply watch and wait for that to happen! So simple, I love it!
So on this Sunday afternoon, we are again preparing for a trip to Dallas tomorrow. A trip to see Aiden’s pediatric nephrologist (kidney specialist) for his monthly dialysis clinic. But, instead of coming home with my family, this Mama is hopping on a plane to Ohio and a Lilith Fair concert with a good friend! I’m excited, nervous and oh-so-happy that this trip will be made without the additional worry of a new diagnosis or surgery looming in our future.
Today, I’m looking forward to Monday with anticipation, even excitement. What a difference a week can make!
Can’t wait to tell ya all about my trip on next week’s post! In the meantime, check out my recent post at The Mob Society. See ya next week!
" } [9]=> array(13) { ["title"]=> string(13) "The Love Nest" ["link"]=> string(58) "http://www.5minutesforspecialneeds.com/4246/the-love-nest/" ["comments"]=> string(67) "http://www.5minutesforspecialneeds.com/4246/the-love-nest/#comments" ["pubdate"]=> string(31) "Fri, 23 Jul 2010 17:00:58 +0000" ["dc"]=> array(1) { ["creator"]=> string(8) "HeatherP" } ["category"]=> string(53) "AdvocacyDay In And Day OutFoodSpecial Needs Adoptions" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4246" ["description"]=> string(323) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my… bedroom? I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens! (Hey, I made the bed for the picture! That’s an accomplishment in and of itself!) [...]" ["content"]=> array(1) { ["encoded"]=> string(5853) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my…
bedroom?
I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens!
(Hey, I made the bed for the picture! That’s an accomplishment in and of itself!)
So, here we have the overview of the Love Nest. My husband and I sleep there, and so does our son Jack.
Here we have the tube feeding set up. Because nothing says you’re getting a good night of sleep like your child pulling a feeding tube out at 3 AM.
Next to the beds stands our tower of supplies.
You never know when you’re going to need Lysol, gloves, and wipes at a moment’s notice!
This is the big secret…and some of you may thank me for this bit of wisdom.
Know what that is?
It’s a Depend pad. Because… I got sick of changing bed linens three times a night! Insert Depend inside disposable or cloth diaper, and you have plenty of protection for the deluge of pee that flows from the kidneys during the night!
Who needs a place in the closet for shoes, when you can have the Great Pyramid of PediaSure!?
I show you all this, not to be facetious. This is our life. Our daily business.
My son needs protection. I am his Momma Bird. He is in his nest not sure how to make his wings work. I feed him, cuddle him, protect him, and keep him safe. When he stumbles, I scoop him up. When he cries, I wipe his tears. I fight off the badness of his world, in order to protect his heart and soul. I advocate for the betterment of his care.
This article sums up Special Needs Motherhood in a way very fitting of my point. This little bird, who adopted a baby bird that is five times its size, is working itself to exhaustion just feeding it.
So, no, my son sleeping 5 feet away with all sorts of noises constantly being heard in the night is not in the least bit disturbing to me.
We’ll stick to calling it the Love Nest.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(63) "http://www.5minutesforspecialneeds.com/4246/the-love-nest/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "9" } ["summary"]=> string(323) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my… bedroom? I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens! (Hey, I made the bed for the picture! That’s an accomplishment in and of itself!) [...]" ["atom_content"]=> string(5853) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my…
bedroom?
I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens!
(Hey, I made the bed for the picture! That’s an accomplishment in and of itself!)
So, here we have the overview of the Love Nest. My husband and I sleep there, and so does our son Jack.
Here we have the tube feeding set up. Because nothing says you’re getting a good night of sleep like your child pulling a feeding tube out at 3 AM.
Next to the beds stands our tower of supplies.
You never know when you’re going to need Lysol, gloves, and wipes at a moment’s notice!
This is the big secret…and some of you may thank me for this bit of wisdom.
Know what that is?
It’s a Depend pad. Because… I got sick of changing bed linens three times a night! Insert Depend inside disposable or cloth diaper, and you have plenty of protection for the deluge of pee that flows from the kidneys during the night!
Who needs a place in the closet for shoes, when you can have the Great Pyramid of PediaSure!?
I show you all this, not to be facetious. This is our life. Our daily business.
My son needs protection. I am his Momma Bird. He is in his nest not sure how to make his wings work. I feed him, cuddle him, protect him, and keep him safe. When he stumbles, I scoop him up. When he cries, I wipe his tears. I fight off the badness of his world, in order to protect his heart and soul. I advocate for the betterment of his care.
This article sums up Special Needs Motherhood in a way very fitting of my point. This little bird, who adopted a baby bird that is five times its size, is working itself to exhaustion just feeding it.
So, no, my son sleeping 5 feet away with all sorts of noises constantly being heard in the night is not in the least bit disturbing to me.
We’ll stick to calling it the Love Nest.
" } } ["channel"]=> array(8) { ["title"]=> string(27) "5 Minutes for Special Needs" ["link"]=> string(38) "http://www.5minutesforspecialneeds.com" ["description"]=> string(29) "Support. Insight. Inspiration" ["lastbuilddate"]=> string(31) "Fri, 30 Jul 2010 13:00:41 +0000" ["language"]=> string(2) "en" ["sy"]=> array(2) { ["updateperiod"]=> string(6) "hourly" ["updatefrequency"]=> string(1) "1" } ["generator"]=> string(27) "http://wordpress.org/?v=3.0" ["tagline"]=> string(29) "Support. Insight. Inspiration" } ["textinput"]=> array(0) { } ["image"]=> array(0) { } ["feed_type"]=> string(3) "RSS" ["feed_version"]=> string(3) "2.0" ["stack"]=> array(0) { } ["inchannel"]=> bool(false) ["initem"]=> bool(false) ["incontent"]=> bool(false) ["intextinput"]=> bool(false) ["inimage"]=> bool(false) ["current_field"]=> string(0) "" ["current_namespace"]=> bool(false) ["_CONTENT_CONSTRUCTS"]=> array(6) { [0]=> string(7) "content" [1]=> string(7) "summary" [2]=> string(4) "info" [3]=> string(5) "title" [4]=> string(7) "tagline" [5]=> string(9) "copyright" } ["last_modified"]=> string(31) "Fri, 30 Jul 2010 13:00:41 GMT " ["etag"]=> string(36) ""58c5f4b46ba6bd713e2148dc4fffb358" " } } ["feed"]=> object(magpierss)(19) { ["parser"]=> resource(68) of type (Unknown) ["current_item"]=> array(0) { } ["items"]=> array(10) { [0]=> array(13) { ["title"]=> string(21) "What are you reading?" ["link"]=> string(65) "http://www.5minutesforspecialneeds.com/4440/what-are-you-reading/" ["comments"]=> string(74) "http://www.5minutesforspecialneeds.com/4440/what-are-you-reading/#comments" ["pubdate"]=> string(31) "Fri, 30 Jul 2010 13:00:41 +0000" ["dc"]=> array(1) { ["creator"]=> string(6) "LauraS" } ["category"]=> string(49) "BlogBook Reviewsautismbook clubbooksspecial needs" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4440" ["description"]=> string(340) "I have been updating my book recommendations on my website, and would love your input. What are you reading? I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night! Here are a few of my [...]" ["content"]=> array(1) { ["encoded"]=> string(4990) "I have been updating my book recommendations on my website, and would love your input.
What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(70) "http://www.5minutesforspecialneeds.com/4440/what-are-you-reading/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "0" } ["summary"]=> string(340) "I have been updating my book recommendations on my website, and would love your input. What are you reading? I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night! Here are a few of my [...]" ["atom_content"]=> string(4990) "I have been updating my book recommendations on my website, and would love your input.
What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
" } [1]=> array(13) { ["title"]=> string(11) "Help Wanted" ["link"]=> string(56) "http://www.5minutesforspecialneeds.com/4435/help-wanted/" ["comments"]=> string(65) "http://www.5minutesforspecialneeds.com/4435/help-wanted/#comments" ["pubdate"]=> string(31) "Thu, 29 Jul 2010 06:22:48 +0000" ["dc"]=> array(1) { ["creator"]=> string(5) "Janis" } ["category"]=> string(16) "BlogThis Just In" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4435" ["description"]=> string(355) "Complex –adjective 1. composed of many interconnected parts; compound; composite: a complex highway system. 2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery. 3. so complicated or intricate as to be hard to understand or deal with: a complex problem. A friend of mine mentioned to me the other [...]" ["content"]=> array(1) { ["encoded"]=> string(5053) "Complex
–adjective
1. composed of many interconnected parts; compound; composite: a complex highway system.
2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery.
3. so complicated or intricate as to be hard to understand or deal with: a complex problem.
A friend of mine mentioned to me the other day that it’s possible to hire an intern to help me with my business, my blog…whatever I might need. So I got to thinking … forget my blog, what would I use an intern for in my home life? That’s where I could use some help.
Can I teach someone else to do what I do? Every.Day.
How on Earth could an outsider even begin to understand the complexity of my life? Let alone organize it.
Ah, but wouldn’t it be nice…
This could be a good thing, this intern idea.
I wouldn’t need to clone myself after all. I could just be available for the cuddles and kisses, and you know and all the fun stuff. I could leave the eye rolling and the head scratching to the intern.
Anyone else interested in an intern? What would you have them do for you?
" } ["wfw"]=> array(1) { ["commentrss"]=> string(61) "http://www.5minutesforspecialneeds.com/4435/help-wanted/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "4" } ["summary"]=> string(355) "Complex –adjective 1. composed of many interconnected parts; compound; composite: a complex highway system. 2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery. 3. so complicated or intricate as to be hard to understand or deal with: a complex problem. A friend of mine mentioned to me the other [...]" ["atom_content"]=> string(5053) "Complex
–adjective
1. composed of many interconnected parts; compound; composite: a complex highway system.
2. characterized by a very complicated or involved arrangement of parts, units, etc.: complex machinery.
3. so complicated or intricate as to be hard to understand or deal with: a complex problem.
A friend of mine mentioned to me the other day that it’s possible to hire an intern to help me with my business, my blog…whatever I might need. So I got to thinking … forget my blog, what would I use an intern for in my home life? That’s where I could use some help.
Can I teach someone else to do what I do? Every.Day.
How on Earth could an outsider even begin to understand the complexity of my life? Let alone organize it.
Ah, but wouldn’t it be nice…
This could be a good thing, this intern idea.
I wouldn’t need to clone myself after all. I could just be available for the cuddles and kisses, and you know and all the fun stuff. I could leave the eye rolling and the head scratching to the intern.
Anyone else interested in an intern? What would you have them do for you?
" } [2]=> array(13) { ["title"]=> string(15) "Blooming Things" ["link"]=> string(60) "http://www.5minutesforspecialneeds.com/4212/blooming-things/" ["comments"]=> string(69) "http://www.5minutesforspecialneeds.com/4212/blooming-things/#comments" ["pubdate"]=> string(31) "Wed, 28 Jul 2010 20:00:14 +0000" ["dc"]=> array(1) { ["creator"]=> string(7) "Deborah" } ["category"]=> string(17) "BlogDeborahFamily" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4212" ["description"]=> string(308) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I [...]" ["content"]=> array(1) { ["encoded"]=> string(6255) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I watered and fed and clipped and snipped and generally did everything I could to help them endure the stress of the hot summer. It dawned on me that I do the same things for my children.

I make sure my children have plenty of food and water, and I make sure it is the right kind of food to help them grow healthy and strong. I snip and clip their environment to make it safe as well as fun. I make sure they get the right amount of sunshine and also darkness for rest. I even mist them occasionally in the sprinkler! While the hot, dry summer stresses my plants, the many doctor and therapy visits, the segregation by schools and recreation programs, the stares and hurtful comments stress my kids. I do all I can to reduce the stress for my plants by tending to their needs, and I do all I can to reduce the stress for my kids by fighting the battles for appropriate educations, appropriate medical services, and inclusion in society.
Ashley is my honeysuckle vine. She grows wildly and moves around to wherever she would like to be. Trying to contain her is wasted effort. Like the vine with its brilliant red blossoms, Ashley’s smile and laugh announce her presence to the world.
Jessica is my rubekia flower(black eyed susans). She will stay in one spot for quite a while but ever so slowly will move out of her perimeter. Like the flowers, she is bright and showy, announcing to the world her happiness.
Corey is my cactus plant. He grows ever so slowly and can at times be quite prickly. But like the cactus to a stranded desert traveler, his inside holds nourishment for the soul. Getting to that center is often difficult though.
Chip is the huge red maple that shades the front of our house. He is steady and grounded, strong but ready at a moment’s notice for fun, as is the tree which welcomes a climbing child. Different seasons bring different visions of his color and personality.
Ronnie is my forsythia bush. No matter how people have tried to define and contain him throughout his life, he grows wild and free. His smile is as bright as the yellow flowers that announce the Spring, and like the brillaint green foliage of the forsythia’s summer, Ronnie flourishes despite all the medical setbacks in his life.
I am so blessed that I have been given the opportunity to nurture my special children and to watch them grow and bloom. The beautiful, strong flowers and plants in my yard stand as representatives to the value of tending things wild – be they honeysuckle vines or children!
Deborah can be found writing here at 5MFSN every Wednesday, and can also be found at Pipecleaner Dreams.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(65) "http://www.5minutesforspecialneeds.com/4212/blooming-things/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(308) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I [...]" ["atom_content"]=> string(6255) "As I sat on my front porch last night enjoying an unusually pleasant late July breeze, I really looked at my yard and all the plants growing in it. I noticed that many of the plants and flowers had flourished despite the near drought conditions we have experienced this summer. Perhaps it was because I watered and fed and clipped and snipped and generally did everything I could to help them endure the stress of the hot summer. It dawned on me that I do the same things for my children.

I make sure my children have plenty of food and water, and I make sure it is the right kind of food to help them grow healthy and strong. I snip and clip their environment to make it safe as well as fun. I make sure they get the right amount of sunshine and also darkness for rest. I even mist them occasionally in the sprinkler! While the hot, dry summer stresses my plants, the many doctor and therapy visits, the segregation by schools and recreation programs, the stares and hurtful comments stress my kids. I do all I can to reduce the stress for my plants by tending to their needs, and I do all I can to reduce the stress for my kids by fighting the battles for appropriate educations, appropriate medical services, and inclusion in society.
Ashley is my honeysuckle vine. She grows wildly and moves around to wherever she would like to be. Trying to contain her is wasted effort. Like the vine with its brilliant red blossoms, Ashley’s smile and laugh announce her presence to the world.
Jessica is my rubekia flower(black eyed susans). She will stay in one spot for quite a while but ever so slowly will move out of her perimeter. Like the flowers, she is bright and showy, announcing to the world her happiness.
Corey is my cactus plant. He grows ever so slowly and can at times be quite prickly. But like the cactus to a stranded desert traveler, his inside holds nourishment for the soul. Getting to that center is often difficult though.
Chip is the huge red maple that shades the front of our house. He is steady and grounded, strong but ready at a moment’s notice for fun, as is the tree which welcomes a climbing child. Different seasons bring different visions of his color and personality.
Ronnie is my forsythia bush. No matter how people have tried to define and contain him throughout his life, he grows wild and free. His smile is as bright as the yellow flowers that announce the Spring, and like the brillaint green foliage of the forsythia’s summer, Ronnie flourishes despite all the medical setbacks in his life.
I am so blessed that I have been given the opportunity to nurture my special children and to watch them grow and bloom. The beautiful, strong flowers and plants in my yard stand as representatives to the value of tending things wild – be they honeysuckle vines or children!
Deborah can be found writing here at 5MFSN every Wednesday, and can also be found at Pipecleaner Dreams.
" } [3]=> array(13) { ["title"]=> string(27) "Special Exposure Wednesday." ["link"]=> string(74) "http://www.5minutesforspecialneeds.com/4427/special-exposure-wednesday-45/" ["comments"]=> string(83) "http://www.5minutesforspecialneeds.com/4427/special-exposure-wednesday-45/#comments" ["pubdate"]=> string(31) "Wed, 28 Jul 2010 09:02:40 +0000" ["dc"]=> array(1) { ["creator"]=> string(10) "TiffandIvy" } ["category"]=> string(45) "BlogSpecial Exposure WednesdayTiffphotography" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4427" ["description"]=> string(348) "This week has been full to overflowing with port trouble. Hope your week has been better. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus. Tweet This! Share this on Facebook Stumble upon something good? Share it [...]" ["content"]=> array(1) { ["encoded"]=> string(3820) "
This week has been full to overflowing with port trouble.
Hope your week has been better.
Got something to share?
Why don’t you join in this Special Exposure Wednesday.
Please remember your comment love at each link you visit.
Also posting at Three Ring Circus.

This week has been full to overflowing with port trouble.
Hope your week has been better.
Got something to share?
Why don’t you join in this Special Exposure Wednesday.
Please remember your comment love at each link you visit.
Also posting at Three Ring Circus.
When your kids a beyond the norm, you have to adapt. There is the obvious rigorous schedule of meds, therapy, stretching, speech exercises, feedings and freak out. But there is more.
Over the years, I have noticed that parents of kids with special needs have a common thread with another part of our society. I have known many cops, emergency room personnel, even a couple of medical examiners. We all have a similar sense of humor. There are so many dark words outsiders describe it. Morbid, saturnine, lugubrious. I call it coping.
It’s something that you keep amongst others in your circle of other parents in your situation. We keep the joking about her getting her driver’s license before potty training to the waiting rooms of physical therapy and other “safe” places.
Not long ago I was met with a poor response when I posted this photos on Facebook. I found the caption humorous. We have been struggling with Bear’s weight for years. Her lack of body fat gives her a pale complexion that doesn’t photograph well in most lighting. The look on her face was funny.

She keep me up at all hours and it makes me feel like a zombie. The kid will eat everything put her way and not gain a single ounce. I walk around in a daze. Maybe a change of diet will help us avoid time in the nutritionist clinic. I shrugged off the remarks made on the photo and moved on.
If we can’t find humor in something in our off-the-wall lives, we’ll crumble.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(76) "http://www.5minutesforspecialneeds.com/4423/a-different-sense-of-humor/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "5" } ["summary"]=> string(316) "When your kids a beyond the norm, you have to adapt. There is the obvious rigorous schedule of meds, therapy, stretching, speech exercises, feedings and freak out. But there is more. Over the years, I have noticed that parents of kids with special needs have a common thread with another part of our society. I [...]" ["atom_content"]=> string(4484) "When your kids a beyond the norm, you have to adapt. There is the obvious rigorous schedule of meds, therapy, stretching, speech exercises, feedings and freak out. But there is more.
Over the years, I have noticed that parents of kids with special needs have a common thread with another part of our society. I have known many cops, emergency room personnel, even a couple of medical examiners. We all have a similar sense of humor. There are so many dark words outsiders describe it. Morbid, saturnine, lugubrious. I call it coping.
It’s something that you keep amongst others in your circle of other parents in your situation. We keep the joking about her getting her driver’s license before potty training to the waiting rooms of physical therapy and other “safe” places.
Not long ago I was met with a poor response when I posted this photos on Facebook. I found the caption humorous. We have been struggling with Bear’s weight for years. Her lack of body fat gives her a pale complexion that doesn’t photograph well in most lighting. The look on her face was funny.

She keep me up at all hours and it makes me feel like a zombie. The kid will eat everything put her way and not gain a single ounce. I walk around in a daze. Maybe a change of diet will help us avoid time in the nutritionist clinic. I shrugged off the remarks made on the photo and moved on.
If we can’t find humor in something in our off-the-wall lives, we’ll crumble.
" } [5]=> array(13) { ["title"]=> string(39) "Every month?.or when the time is right." ["link"]=> string(82) "http://www.5minutesforspecialneeds.com/4411/every-month-or-when-the-time-is-right/" ["comments"]=> string(91) "http://www.5minutesforspecialneeds.com/4411/every-month-or-when-the-time-is-right/#comments" ["pubdate"]=> string(31) "Tue, 27 Jul 2010 04:07:16 +0000" ["dc"]=> array(1) { ["creator"]=> string(16) "Tammy and Parker" } ["category"]=> string(45) "Tammyblood drawsBNPdown syndromespecial needs" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4411" ["description"]=> string(323) "Each month it goes something like this: Hmmm….I need to get Parker’s montly bloodwork drawn. All one zillion and one bottles pulled for the zillion and two different tests. The liver function panel. The Thyroid. The CBC The tests to see if the statin Parker is on is breaking down his muscle mass. But the [...]" ["content"]=> array(1) { ["encoded"]=> string(6592) "Each month it goes something like this:
Hmmm….I need to get Parker’s montly bloodwork drawn.
All one zillion and one bottles pulled for the zillion and two different tests.
The liver function panel.
The Thyroid.
The CBC
The tests to see if the statin Parker is on is breaking down his muscle mass.
But the one the strikes terror in this Mama’s heart is the BNP. (B-type-Natriuretic Peptide) This lets us know if Parker’s heart is working harder than it should be.
Anything under 100 is considered normal. (Parker’s BNP was once in the 1300′s ! )
But I don’t want normal. I want “Hot Damn!” The BNP came back looking GREAT and now I can be happy the rest of the month.
Yeah. You read that right.
One blood test can set the tone for my whole month. What can I say? We all have our weird and this is some of mine. I have yet to learn how to not freak out….uh….worry a bit.
This is such an issue with me that I have been known to go to rather OCD levels to make sure we achieve the most opportune blood draw experience possible.
Because being just a tad bit sick can throw off BNP results.
Or if Parker is crying during the actual blood draw, that too can muck up the final numbers.
We just got back from Parker’s latest blood draw about 30 minutes ago. I really should have had this done last week, but Parker’s sleeping heart rate was higher than it should have been (most likely due to the constant aspirating he’s doing with his saliva) and so I waited until today.
Today, I thought, the time is right.
When I saw who was on duty at the lab, I almost turned around and came home. We have certain ‘lucky’ lab techs that hit the motherlode the first stick. Parker trusts these two techs. We’ve never had today’s tech and I wasn’t sure if I should take the chance…..or just come back another day.
So here I sit. Waiting for the cardiologist to call back with the results. It will mostly likely be tomorrow or the next day before he calls.
Which gives me lots of time to assume the worst.
Yup. Just call me Dame Doom.
To help me bide this time, and take my mind off things, how about sharing with me things YOU dread having to deal with when it comes to your kid with special needs.
And how do you deal with it?
Update: Dr. Heart just called. Parker’s BNP just came back at 18. EIGHTEEN! woot! That is excellent.
Dr. Heart gave me all of 20 seconds to rejoice before mentioning that he’d really like to get Parker back in the cath lab soon.
Crap. Heart caths require lots and lots of Valium.
For me.
Well, I guess 20 seconds of Happy Dancing is better than none at all. I’ll take it!
Tammy and Parker can also be found hanging out at their other blog, Praying for Parker where they dish about what’s it’s like to raise a special needs kid in a typical world. They also spend time on Twitter where they are known as @ParkerMama.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(87) "http://www.5minutesforspecialneeds.com/4411/every-month-or-when-the-time-is-right/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(323) "Each month it goes something like this: Hmmm….I need to get Parker’s montly bloodwork drawn. All one zillion and one bottles pulled for the zillion and two different tests. The liver function panel. The Thyroid. The CBC The tests to see if the statin Parker is on is breaking down his muscle mass. But the [...]" ["atom_content"]=> string(6592) "Each month it goes something like this:
Hmmm….I need to get Parker’s montly bloodwork drawn.
All one zillion and one bottles pulled for the zillion and two different tests.
The liver function panel.
The Thyroid.
The CBC
The tests to see if the statin Parker is on is breaking down his muscle mass.
But the one the strikes terror in this Mama’s heart is the BNP. (B-type-Natriuretic Peptide) This lets us know if Parker’s heart is working harder than it should be.
Anything under 100 is considered normal. (Parker’s BNP was once in the 1300′s ! )
But I don’t want normal. I want “Hot Damn!” The BNP came back looking GREAT and now I can be happy the rest of the month.
Yeah. You read that right.
One blood test can set the tone for my whole month. What can I say? We all have our weird and this is some of mine. I have yet to learn how to not freak out….uh….worry a bit.
This is such an issue with me that I have been known to go to rather OCD levels to make sure we achieve the most opportune blood draw experience possible.
Because being just a tad bit sick can throw off BNP results.
Or if Parker is crying during the actual blood draw, that too can muck up the final numbers.
We just got back from Parker’s latest blood draw about 30 minutes ago. I really should have had this done last week, but Parker’s sleeping heart rate was higher than it should have been (most likely due to the constant aspirating he’s doing with his saliva) and so I waited until today.
Today, I thought, the time is right.
When I saw who was on duty at the lab, I almost turned around and came home. We have certain ‘lucky’ lab techs that hit the motherlode the first stick. Parker trusts these two techs. We’ve never had today’s tech and I wasn’t sure if I should take the chance…..or just come back another day.
So here I sit. Waiting for the cardiologist to call back with the results. It will mostly likely be tomorrow or the next day before he calls.
Which gives me lots of time to assume the worst.
Yup. Just call me Dame Doom.
To help me bide this time, and take my mind off things, how about sharing with me things YOU dread having to deal with when it comes to your kid with special needs.
And how do you deal with it?
Update: Dr. Heart just called. Parker’s BNP just came back at 18. EIGHTEEN! woot! That is excellent.
Dr. Heart gave me all of 20 seconds to rejoice before mentioning that he’d really like to get Parker back in the cath lab soon.
Crap. Heart caths require lots and lots of Valium.
For me.
Well, I guess 20 seconds of Happy Dancing is better than none at all. I’ll take it!
Tammy and Parker can also be found hanging out at their other blog, Praying for Parker where they dish about what’s it’s like to raise a special needs kid in a typical world. They also spend time on Twitter where they are known as @ParkerMama.
" } [6]=> array(13) { ["title"]=> string(13) "Oh, happy day" ["link"]=> string(57) "http://www.5minutesforspecialneeds.com/4393/oh-happy-day/" ["comments"]=> string(66) "http://www.5minutesforspecialneeds.com/4393/oh-happy-day/#comments" ["pubdate"]=> string(31) "Mon, 26 Jul 2010 16:00:58 +0000" ["dc"]=> array(1) { ["creator"]=> string(8) "Ellen S." } ["category"]=> string(4) "Blog" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4393" ["description"]=> string(297) "Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I [...]" ["content"]=> array(1) { ["encoded"]=> string(4640) "
Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I think he would have gladly slept there, right in the lounge. Or in the car. Or on a deck chair. It wouldn’t have mattered to him.
We try not to center our excursions around Max’s sensitivities and needs, because if we did we’d end up at the same places again and again—he likes familiarity. But exposing him to new places is good for growing his intelligence, and keeping ourselves sane. It also means every outing is a crap shoot, as we’re never sure how Max will respond. Typically, initially he’s scared. When he first saw the ferry, he shook his head “no” and looked petrified. Then we coasted onto the boat and within minutes, he was trotting around everywhere.
We’ve learned, over the years, that it helps to get to places early before they fill up; it’s easier for Max to adjust when it’s quiet.
Sometimes, though, there’s no getting past the discomfort. We took him to a pro-league baseball game not long ago, and he just hated it. He cried and cried. Nothing would console him, not even the promise of ice-cream or a free softball someone gave us. We had to leave early.
How do your kids typically respond when you take them to new places? Have you learned any tricks over the years for helping them adjust?
Ellen blogs daily at Love That Max
" } ["wfw"]=> array(1) { ["commentrss"]=> string(62) "http://www.5minutesforspecialneeds.com/4393/oh-happy-day/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(297) "Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I [...]" ["atom_content"]=> string(4640) "
Here’s Max looking woeful as we were driving off a ferry yesterday. It was the first time we ever took the car on a boat, and we weren’t sure how he’d respond. Sometimes, he wigs out in new situations. But, no: Max looooooved it. So much so he wanted to stay on the boat. I think he would have gladly slept there, right in the lounge. Or in the car. Or on a deck chair. It wouldn’t have mattered to him.
We try not to center our excursions around Max’s sensitivities and needs, because if we did we’d end up at the same places again and again—he likes familiarity. But exposing him to new places is good for growing his intelligence, and keeping ourselves sane. It also means every outing is a crap shoot, as we’re never sure how Max will respond. Typically, initially he’s scared. When he first saw the ferry, he shook his head “no” and looked petrified. Then we coasted onto the boat and within minutes, he was trotting around everywhere.
We’ve learned, over the years, that it helps to get to places early before they fill up; it’s easier for Max to adjust when it’s quiet.
Sometimes, though, there’s no getting past the discomfort. We took him to a pro-league baseball game not long ago, and he just hated it. He cried and cried. Nothing would console him, not even the promise of ice-cream or a free softball someone gave us. We had to leave early.
How do your kids typically respond when you take them to new places? Have you learned any tricks over the years for helping them adjust?
Ellen blogs daily at Love That Max
" } [7]=> array(13) { ["title"]=> string(34) "Magic Marker Monday ? Doodle Bugs?" ["link"]=> string(76) "http://www.5minutesforspecialneeds.com/4164/magic-marker-monday-doodle-bugs/" ["comments"]=> string(85) "http://www.5minutesforspecialneeds.com/4164/magic-marker-monday-doodle-bugs/#comments" ["pubdate"]=> string(31) "Sun, 25 Jul 2010 23:00:49 +0000" ["dc"]=> array(1) { ["creator"]=> string(8) "Michelle" } ["category"]=> string(19) "Magic Marker Monday" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4164" ["description"]=> string(328) "“It took me four years to paint like Raphael, but a lifetime to paint like a child.” ~Pablo Picasso Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back… My kid-art smile this week came in the form of a crayon sketch recording the [...]" ["content"]=> array(1) { ["encoded"]=> string(5199) "![]()
“It took me four years to paint like Raphael, but a lifetime to paint like a child.”
~Pablo Picasso
Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back…

My kid-art smile this week came in the form of a crayon sketch recording the sights of a recent nature walk with our 7-year-old:
“Things I have seen. Beetle. I saw this on our walk, dragonfly. I saw this on our walk, butterfly. Ant. Lady bug. Yellow lady bug.”
Don’t you just love summer?
![]()
What has your little artist been up to? Link up and share!
Want the Magic Marker Monday button code? Click Here!
Find out more about Michelle
Meet Michelle here each Monday for Magic Marker Monday
Questions? Please feel free to email Michelle at childlif[at]gmail[dot]com or come and visit her at In The Life of a Child
![]()
“It took me four years to paint like Raphael, but a lifetime to paint like a child.”
~Pablo Picasso
Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back…

My kid-art smile this week came in the form of a crayon sketch recording the sights of a recent nature walk with our 7-year-old:
“Things I have seen. Beetle. I saw this on our walk, dragonfly. I saw this on our walk, butterfly. Ant. Lady bug. Yellow lady bug.”
Don’t you just love summer?
![]()
What has your little artist been up to? Link up and share!
Want the Magic Marker Monday button code? Click Here!
Find out more about Michelle
Meet Michelle here each Monday for Magic Marker Monday
Questions? Please feel free to email Michelle at childlif[at]gmail[dot]com or come and visit her at In The Life of a Child
What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure.
After 3 years of bad news, it’s sometimes hard to find hope. That’s when we ask for prayers and support. Thank you so much for answering our call to arms. Thank you for the prayers you whispered and the hugs (virtual and real) that you sent our way. They mean the world and the Big Guy was listening.
Our appointment with the pediatric bone specialist went far better than I could ever have hoped. No rare disease. No surgery. Not even braces. For once our extraordinary little man falls into the ordinary category–how cool is that?! Aiden is expected to outgrown his little bow legs in a few years and we will simply watch and wait for that to happen! So simple, I love it!
So on this Sunday afternoon, we are again preparing for a trip to Dallas tomorrow. A trip to see Aiden’s pediatric nephrologist (kidney specialist) for his monthly dialysis clinic. But, instead of coming home with my family, this Mama is hopping on a plane to Ohio and a Lilith Fair concert with a good friend! I’m excited, nervous and oh-so-happy that this trip will be made without the additional worry of a new diagnosis or surgery looming in our future.
Today, I’m looking forward to Monday with anticipation, even excitement. What a difference a week can make!
Can’t wait to tell ya all about my trip on next week’s post! In the meantime, check out my recent post at The Mob Society. See ya next week!
" } ["wfw"]=> array(1) { ["commentrss"]=> string(80) "http://www.5minutesforspecialneeds.com/4396/the-difference-a-week-can-make/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "3" } ["summary"]=> string(331) "What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure. After 3 years of bad news, it’s sometimes hard [...]" ["atom_content"]=> string(4904) "
What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure.
After 3 years of bad news, it’s sometimes hard to find hope. That’s when we ask for prayers and support. Thank you so much for answering our call to arms. Thank you for the prayers you whispered and the hugs (virtual and real) that you sent our way. They mean the world and the Big Guy was listening.
Our appointment with the pediatric bone specialist went far better than I could ever have hoped. No rare disease. No surgery. Not even braces. For once our extraordinary little man falls into the ordinary category–how cool is that?! Aiden is expected to outgrown his little bow legs in a few years and we will simply watch and wait for that to happen! So simple, I love it!
So on this Sunday afternoon, we are again preparing for a trip to Dallas tomorrow. A trip to see Aiden’s pediatric nephrologist (kidney specialist) for his monthly dialysis clinic. But, instead of coming home with my family, this Mama is hopping on a plane to Ohio and a Lilith Fair concert with a good friend! I’m excited, nervous and oh-so-happy that this trip will be made without the additional worry of a new diagnosis or surgery looming in our future.
Today, I’m looking forward to Monday with anticipation, even excitement. What a difference a week can make!
Can’t wait to tell ya all about my trip on next week’s post! In the meantime, check out my recent post at The Mob Society. See ya next week!
" } [9]=> array(13) { ["title"]=> string(13) "The Love Nest" ["link"]=> string(58) "http://www.5minutesforspecialneeds.com/4246/the-love-nest/" ["comments"]=> string(67) "http://www.5minutesforspecialneeds.com/4246/the-love-nest/#comments" ["pubdate"]=> string(31) "Fri, 23 Jul 2010 17:00:58 +0000" ["dc"]=> array(1) { ["creator"]=> string(8) "HeatherP" } ["category"]=> string(53) "AdvocacyDay In And Day OutFoodSpecial Needs Adoptions" ["guid"]=> string(46) "http://www.5minutesforspecialneeds.com/?p=4246" ["description"]=> string(323) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my… bedroom? I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens! (Hey, I made the bed for the picture! That’s an accomplishment in and of itself!) [...]" ["content"]=> array(1) { ["encoded"]=> string(5853) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my…
bedroom?
I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens!
(Hey, I made the bed for the picture! That’s an accomplishment in and of itself!)
So, here we have the overview of the Love Nest. My husband and I sleep there, and so does our son Jack.
Here we have the tube feeding set up. Because nothing says you’re getting a good night of sleep like your child pulling a feeding tube out at 3 AM.
Next to the beds stands our tower of supplies.
You never know when you’re going to need Lysol, gloves, and wipes at a moment’s notice!
This is the big secret…and some of you may thank me for this bit of wisdom.
Know what that is?
It’s a Depend pad. Because… I got sick of changing bed linens three times a night! Insert Depend inside disposable or cloth diaper, and you have plenty of protection for the deluge of pee that flows from the kidneys during the night!
Who needs a place in the closet for shoes, when you can have the Great Pyramid of PediaSure!?
I show you all this, not to be facetious. This is our life. Our daily business.
My son needs protection. I am his Momma Bird. He is in his nest not sure how to make his wings work. I feed him, cuddle him, protect him, and keep him safe. When he stumbles, I scoop him up. When he cries, I wipe his tears. I fight off the badness of his world, in order to protect his heart and soul. I advocate for the betterment of his care.
This article sums up Special Needs Motherhood in a way very fitting of my point. This little bird, who adopted a baby bird that is five times its size, is working itself to exhaustion just feeding it.
So, no, my son sleeping 5 feet away with all sorts of noises constantly being heard in the night is not in the least bit disturbing to me.
We’ll stick to calling it the Love Nest.
" } ["wfw"]=> array(1) { ["commentrss"]=> string(63) "http://www.5minutesforspecialneeds.com/4246/the-love-nest/feed/" } ["slash"]=> array(1) { ["comments"]=> string(1) "9" } ["summary"]=> string(323) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my… bedroom? I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens! (Hey, I made the bed for the picture! That’s an accomplishment in and of itself!) [...]" ["atom_content"]=> string(5853) "Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my…
bedroom?
I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens!
(Hey, I made the bed for the picture! That’s an accomplishment in and of itself!)
So, here we have the overview of the Love Nest. My husband and I sleep there, and so does our son Jack.
Here we have the tube feeding set up. Because nothing says you’re getting a good night of sleep like your child pulling a feeding tube out at 3 AM.
Next to the beds stands our tower of supplies.
You never know when you’re going to need Lysol, gloves, and wipes at a moment’s notice!
This is the big secret…and some of you may thank me for this bit of wisdom.
Know what that is?
It’s a Depend pad. Because… I got sick of changing bed linens three times a night! Insert Depend inside disposable or cloth diaper, and you have plenty of protection for the deluge of pee that flows from the kidneys during the night!
Who needs a place in the closet for shoes, when you can have the Great Pyramid of PediaSure!?
I show you all this, not to be facetious. This is our life. Our daily business.
My son needs protection. I am his Momma Bird. He is in his nest not sure how to make his wings work. I feed him, cuddle him, protect him, and keep him safe. When he stumbles, I scoop him up. When he cries, I wipe his tears. I fight off the badness of his world, in order to protect his heart and soul. I advocate for the betterment of his care.
This article sums up Special Needs Motherhood in a way very fitting of my point. This little bird, who adopted a baby bird that is five times its size, is working itself to exhaustion just feeding it.
So, no, my son sleeping 5 feet away with all sorts of noises constantly being heard in the night is not in the least bit disturbing to me.
We’ll stick to calling it the Love Nest.
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What are you reading?
I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night!
Here are a few of my current favorites in the “Just for Fun” category:
A warning. They are all not “just fun” but they are really, really good.
Tell me. What are you reading?
Follow me on FACEBOOK and TWITTER and read the first three chapters of my book HERE.
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