The Autism Retort Blog Den autisme Retort blog

A reader, Rev nancy , recently commented on a post about Religious Education for Autistic Children : En læser, Rev Nancy, for nylig udtalte sig om en post om Religiøs Uddannelse for autistiske børn:

Hi I came to the website out of an experience last summer with a man in a parish I was visiting who had two autistic children. Hej jeg kom til webstedet ud af en oplevelse sidste sommer med en mand i et sogn jeg var på besøg, som havde to autistiske børn. When I was in the inner city I wrote simple gospel plays for children with one line apiece for each character because the kids could not read. Da jeg var i den indre by jeg skrev enkel evangeliet spiller for børn med en linje pr.stk for hver karakter, fordi børnene ikke kunne læse. I used my imagination for most of them. Jeg brugte min fantasi for de fleste af dem. I gave the parishioner two and he took them home and read them with his children He said they liked it very much. Jeg gav et sogn to, og han tog dem hjem og læse dem med sine børn Han sagde, at de kan lide det meget. I gather these children are high functioning but it would be possible to do these with simple masks or puppets. Jeg forstår disse børn er høj funktion, men det ville være muligt at gøre disse med enkle masker eller marionetter. What else are people doing to teach? Hvad der ellers er folk gør for at undervise?

Suggestions, ideas, thoughts much appreciated! Forslag, ideer, tanker meget værdsat!

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My son’s toy preferences have always been straightforward and basic. Min søns legetøj præferencer har altid været ligetil og grundlæggende. Things made out of wood, with strong colors, minimal “special features,” certain textures, have all along been favored. Tingene er lavet af træ, med stærke farver, minimal "særlige kendetegn," visse teksturer, har alle sammen været begunstigede. Gizmos aren’t Charlie. Gizmos er ikke Charlie. While he’s been very glad to be in possession of two Leapsters (one beat up and not really working, the other still kind of newish), carrying them around and keeping them with him seems as or more important than pushing the buttons and looking at the little screen and playing the games. Mens han har været meget glad for at være i besiddelse af to Leapsters (en slå op og ikke rigtig arbejder, den anden stadig slags newish), der transporterer dem rundt og holde dem sammen med ham ser ud som eller mere vigtigt end at trykke på knapperne og se på den lille skærm og spille spil.

So it makes sense to me that a stick was inducted into the National Toy Hall of Fame. Så det giver mening for mig, at en stok var inducted i den nationale Toy Hall of Fame. Few playthings can be more basic and readily found in one’s own frontyard. Simplex munditis , yes. Par legetøj kan være mere grundlæggende og let findes i ens eget frontyard. Simplex munditis, ja.

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The new Terminator has been “professionally diagnosed with mild autism”? Den nye Terminator er blevet "professionelt diagnosticeret med mild autisme"? From Sci Fi Wire : Fra Sci Fi Wire:

Personality-wise, Cameron still has a ways to go, recently having been professionally diagnosed with mild autism. Person-klog, Cameron stadig har en veje at gå, for nylig har været professionelt diagnosticeret med mild autisme. But like all Terminators to come before her, she’sa sponge for information. Men ligesom alle terminatorer til at komme før hende, she'sa svamp til orientering. She’s been reading the Bible, watching TV and observing the kids around her to get a grasp on all the latest hipster lingo. Hun har været læser Bibelen, ser tv og observerer børnene omkring hende for at få fat på alle de nyeste hipster Lingo. It doesn’t always come out quite as it should, but she’s learning from her mistakes. Det er ikke altid kommet ud helt som det skal, men hun er at lære af hendes fejl.

Is there the suggestion here that something being autistic leaves one a bit lacking in the personality department? Er der forslag her, at noget bliver autistiske giver en lidt mangler i personlighed afdeling?

h/t to Jen! h / t til Jen!

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What a week—–I guess that is kind of an understatement. Sikke en uge - jeg tror det er sådan en underdrivelse. There was a new, and frustratingly improbable theory of autism causation : Rain. Der var en ny, og frustrerende usandsynligt teori om autisme årsagssammenhæng: Regn. The Times Online reminds us that, as has often been said, a correlation does not mean you’ve got a cause and notes that there’s indeed doubt as to “whether the paper deserved to be published and reported.” The line of reasoning followed by the paper’s author, Michael Waldman of the Johnson School at Cornell University is that living in a wetter climate leads children to stay inside more, and to be exposed to less sunlight and so produce less Vitamin D, and to spend more time on indoor activities such as watching TV—and to become autisitic. The Times Online minder os om, at, som er ofte blevet sagt, en korrelation betyder ikke, du har en årsag og bemærker, at der faktisk er tvivl om, at "uanset om papiret har fortjent at blive offentliggjort og rapporteres." Det ræsonnement efterfulgt af papir forfatter, Michael Waldman af Johnson Skole på Cornell University er at leve i et vådere klima fører børn til at blive inde mere, og at blive udsat for mindre sollys og dermed producere mindre D-vitamin, og at tilbringe mere tid om indendørs aktiviteter, såsom at se tv-og blive autisitic.

Theorizing that TV might cause autism was the topic of an earlier paper by Prof. Waldman that relied as much on correlations and associations. Theorizing at TV kan forårsage autisme var emnet for et tidligere papir prof. Waldman, der påberåbes så meget om korrelationer og foreninger. I wrote to Prof. Waldman about his TV-autism theory back in October of 2006. Jeg skrev til Prof. Waldman om hans TV-autisme teori tilbage i oktober 2006. The TV theory made especially little sense in our household because we don’t have a TV and, when we did, Charlie was not one to watch it, beyond certain favorite videos. TV-teori, der er specielt megen mening i vores husholdning, fordi vi ikke har et TV, og når vi gjorde, Charlie var ikke en til at se det, ud over visse yndlingsvideoer. Indeed, Charlie’s preferred activity is to be outside, pacing or roaming, preferably on a day with a clear blue sky and lots of sunshine. Ja, Charlie's foretrukne aktivitet er at være udenfor, pacemaker eller roaming, helst på en dag med en klar blå himmel og masser af solskin. He is, though, pretty tolerant of rain and when it’s not too heavy—misting—-he doesn’t seem to care at all. Han er dog temmelig tolerant af regn og når den ikke er for tung-misting - han synes ikke at passe på alle. This is obviously a correlation, but I’d say he’s more focused and calmed and at ease for being outside (mist or rain). Dette er naturligvis en sammenhæng, men jeg vil sige, han er mere fokuseret og mere rolig og afslappet forhold til at ligge uden for (tåge eller regn).

Anyways, as we have no TV, we weren’t able to sit in front of it to watch the results of the US Presidential election pour in (I did not mean that as a pun) on Tuesday night . Anyways, som vi har ingen TV, var vi ikke i stand til at sidde foran det til at se resultaterne af præsidentvalget i USA pour i (jeg har ikke betyde, at som et ordspil) tirsdag nat. Jim went to the gym and watched TV there and I flitted around between every major news website I could think of; Charlie was sound asleep, after a good day at school, a log walk (in misty conditions), and a potentially disappointing visit to the grocery store because they’d lost their power and almost all refrigerated and frozen items had had to be tossed, and Charlie was unable to find the usual items (vegetarian egg rolls and mini carrots, among others) that he favors. Jim gik til gymnastiksalen, og set TV der, og jeg flitted rundt mellem alle større nyheder website jeg kunne tænke på; Charlie var sund søvn, efter en god dag i skolen, en log gåtur (i tåget betingelser), og et potentielt skuffende besøg Bilka, fordi de havde mistet deres magt, og næsten alle kølede og frosne elementer måtte kastede, og Charlie var ude af stand til at finde de sædvanlige poster (vegetar æg ruller og mini gulerødder, blandt andre) at han favoriserer.

You know what happened in the election, and then before you know it there’s been a brouhaha about the suggestion that Robert F. Kennedy, Jr., might be considered to head the EPA —-seems not a week can go by without a certain theory of autism causation pushing its way into the public discussion (and onto this blog). De ved, hvad der skete i forbindelse med valget, og derefter, før du ved af det der har været en brouhaha om forslaget om, at Robert F. Kennedy, Jr., kunne anses for at være leder af EPA - synes ikke en uge kan gå uden en visse teori om autisme årsagssammenhæng skubber sin måde i den offentlige debat (og på denne blog). Turning to the topic I prefer to devote my energies to (despite what may seem to be the case ), it seems that Colin Powell has been mentioned as a possible education secretary . Med hensyn til det emne, jeg foretrækker at bruge min energi til (på trods af, hvad der kan synes at være tilfældet), ser det ud til, at Colin Powell har været nævnt som en mulig uddannelse sekretær.

On which note—-it’s the annual convention for the New Jersey Education Association and Charlie (a student in NJ’s public schools for most of the past 7 years) has had Thursday and Friday off (hence a much appreciated grandparents visit ). Som note - det er den årlige konvention til New Jersey Education Association og Charlie (en elev i NJ's offentlige skoler for de fleste af de sidste 7 år) har haft torsdag og fredag ud (og dermed en meget værdsat bedsteforældre besøg) . And while preoccupied with everything previously noted in this post, guiding Charlie (who made his Monday lunch after school on Wednesday) through a smoother, or reasonably smooth, long weekend has been the main business around here. Og samtidig optaget med alt, hvad der tidligere er konstateret i denne post, ledende Charlie (der gav hans man frokost efter skole på onsdag) gennem en mere smidig, eller rimeligt glat, lang weekend har været den vigtigste forretning her i nærheden. He’s spent a fair amount of time shopping for new pants (this growth spurt thing just won’t let off), hanging with my parents and using an old computer. Han har brugt en del tid shopping for nye bukser (denne voldsomme vækst ting bare ikke vil lade off), hængende med mine forældre og ved hjælp af en gammel computer. I took him for a long swim on Thursday night, Jim did a 12-mile biker ride, and we all went out for Spanish food afterwards. Jeg tog ham for en lang svømme torsdag aften, Jim gjorde en 12-mile Biker ride, og vi alle gik ud for den spanske mad bagefter.

Correlation between all that and a quite peaceful easy-feeling boy? Sammenhæng mellem alt dette og en ganske fredelig let-følelse dreng?

If you choose to see it that way………….. Hvis du vælger at se det på den måde ... ... ... ... ..

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11-year-old Jonathan Rios has been missing since around 11am Friday morning in Northeast Portland, Oregon Live reports: 11-årige Jonathan Rios har været forsvundet siden omkring 11am fredag formiddag i Nordøstgrønland Portland, Oregon Live rapporter:

Police said Jonathan Rios and was last seen around 11:00 am on the 7300 block of Northeast Siskiyou Street. Politiet sagde Jonathan Rios og blev sidst set omkring 11:00 på 7.300 blok af Northeast Siskiyou Street.

Police said Jonathan was in the car with his foster father when they had an argument about a broken video game. Politiet sagde Jonathan var i bilen med hans plejefader, når de havde en diskussion om en brudt video spil. Jonathan’s foster father left him in the car while picking up another child from school, and when he returned, Jonathan was gone, police said. Jonathan's plejefader forlod ham i bilen, samtidig med at tage et andet barn fra skole, og da han vendte tilbage, Jonathan var væk, politiet sagde.

Jonathan is autistic and is said to have a history of running away. Jonathan er autistisk og siges at have en historie at køre væk.

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Linking autism to rates of rainfall could be said to be a quite extensive attempt to find an environmental cause of autism, and one that is clearly external and not genetic. Forbinder autisme at satserne for nedbør kan siges at være en ganske omfattende forsøg på at finde en miljømæssig årsag til autisme, og en, der er klart eksterne og ikke genetiske. Since the study was reported earlier this week, it’s been getting a lot of press. Two genetic studies were also recently noted this week: Ars Technica looks closely at one study on language genes. Another study published in the Archives of Pediatric and Adolescent Medicine looks at parents’ concerns about their own risk and their children’s risks for genetic disease. Da undersøgelsen blev rapporteret tidligere i denne uge, har det været at få en masse presse. To genetiske undersøgelser blev også for nylig bemærkede i denne uge: Ars Technica ser nærmere på en undersøgelse om sprog gener. En anden undersøgelse offentliggjort i Archives af pædiatriske og unge Medicin ser på forældrenes bekymringer om deres egen risiko og deres børns risiko for genetiske sygdomme. With the development of genetic testing and, too, of direct-to-consumer genetic tests , parents can find out a lot more about their genetic profile and quite readily. Med udviklingen af gentest og også direkte over for forbrugerne genetiske tests, forældre kan finde ud af meget mere om deres genetiske profil og ganske let.

Is there a tendency to shy away from genetic theories of autism because of parental guilt about giving children “bad genes” ? Er der en tendens til at vige tilbage genetisk teorier om autisme på grund af forældrenes skyld om at give børn "dårlige gener"?

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How to characterize services/”treatment” that’s educational in nature (like speech therapy; like ABA, in some ways): How to argue that it’s “medically” necessary? Hvordan man kan karakterisere tjenesteydelser / "behandling", der er pædagogisk karakter (gerne tale terapi; gerne ABA, på nogle måder): Hvordan at argumentere for, at det er "medicinsk" nødvendigt? In a November 6th ABC local news report about how a Fremont (CA) mother took on the health care policy of the HMO Kaiser, Kristin Jacobsen of the Alliance of California Autism Organizations says: I en 6 november ABC lokale nyheder rapport om, hvordan en Fremont (CA) mor tog om sundhedspolitik i HMO Kaiser, Kristin Jacobsen af Alliance of California Autisme Organisationer siger:

“I think one of the biggest tragedies is the health plans are for profit businesses. "Jeg tror, en af de største tragedier er sundhed planer for profit virksomheder. They make a lot of money, they collect premiums, these families pay premiums and they expect to get health insurance coverage,” said ….. De gør en masse penge, de indsamler præmier, disse familier betale præmier og de forventer at få sygesikring dækning, «siger ... .. Jacobsen ……….. Jacobsen ... ... ... .. She says Kaiser is not alone in passing off responsibilities for treatment to school districts and regional centers. Hun siger Kaiser er ikke alene i passing off ansvar for behandling i skole-distrikterne og regionale center.

“This is a medical condition. "Dette er en medicinsk tilstand. There’s definitely an educational component that needs to be addressed by the school districts, but it’sa medical condition,” said Jacobsen. Der er afgjort en pædagogisk komponent, som skal behandles af skole-distrikter, men det er en medicinsk tilstand, "siger Jacobsen.

Keeping in mind medical-physical concerns along with educational ones has been crucial for Jim and me in figuring out how to help, teach, and understand Charlie. Holde sig for øje, medicinsk-fysiske problemer sammen med uddannelsesinstitutioner, der har været afgørende for Jim og mig i at regne ud, hvordan man kan hjælpe, undervise, og forstå Charlie. But it’s been particularly important that Charlie’s gotten that medical/educational treatment/teaching /services in a school setting, in which the emphasis is on learning, not on getting “better” to the point when treatment might not be needed anymore and the diagnosis lost . Men det er særligt vigtigt, at Charlie's fået at medicinsk / pædagogisk behandling / undervisning / tjenester i en skole indstilling, hvor der lægges vægt på læring, ikke om at få "bedre" til det punkt, når behandlingen måske ikke være behov for længere og diagnosticering tabt. Is there a danger in over-emphasizing that autism is a “medical condition” (while, of course, noting that many autistic individuals do have medical conditions requiring care and attention)? Er der en fare i alt for at understrege, at autisme er en "sygdomstilstand" (samtidig med, naturligvis, at bemærke, at mange autistiske personer har medicinske tilstande som kræver pleje og opmærksomhed)?

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Unusual use of toys in infancy a clue to later autism , according to a stuy published in the October issue of Autism, the journal of the National Autistic Society . MIND Institute researcher Sally Ozonoff is the lead author. Usædvanlig brug af legetøj i vorden et fingerpeg til senere autisme, ifølge en stuy offentliggjort i oktober spørgsmålet om autisme, Journal of National autistisk Society. HENVISER Institut forsker Sally Ozonoff er den ledende forfatter. “ Strange play ” is said to include spinning, rotating and visual exploring objects in “unusual” ways; 66 infants were involved in the study and nine were later diagnosed with autism; seven out of those nine were noted to spin, etc., toys. "Strange spille" siges at omfatte spinding, roterende og visuel udforskning af genstande i "unormale" måder; 66 spædbørn var involveret i undersøgelsen, og ni blev senere diagnosticeret med autisme; syv ud af de ni blev bemærkes, at spin osv., legetøj .

Ozonoff is quoted as saying that “‘About a third of parents notice signs before a child’s first birthday.’” Researchers hope to be able to identify autism earlier. Ozonoff er citeret for at sige, at "Omkring en tredjedel af forældrene meddelelse tegn før et barns første fødselsdag." Forskerne håber at kunne identificere autisme tidligere. Indeed, it’s the sort of study likely to lead parents of young children to scrutinize, and over-scrutinize, their baby’s play. Ja, det er den slags undersøgelse vil kunne føre forældre med små børn til at studere, og over-granske deres barns spille. (”Oh no, junior is lining up those stacking cups by size along the floorboards again.”) It’s also the sort of study that leads me, inevitably, to glance at Charlie’s baby pictures and say, yeah, at 2 months and before, he was always looking slantwise out of the corners of his eyes and to remember how he could focus for minutes and minutes on certain pictures in his chunky little board books. ( "Åh nej, junior er foring op disse stabling kopper efter størrelse langs floorboards igen.") Det er også den form for undersøgelse, der fører mig, uundgåeligt, at blik på Charlie's baby billeder og siger, ja, ved 2 måneder og før, han var altid på udkig slantwise ud af de hjørner af hans øjne og for at huske, hvordan han kunne koncentrere sig om minutter og minutter på visse billeder i hans chunky lille bord bøger. There was one called Baby’s Colors with two-page layouts of babies surrounded by objects of each color; Charlie’s favorite was “Miss Brown” (as Jim said), an Asian girl surrounded by a host of teddy bears, many bigger than her. Der var en kaldet Baby's farver med to-side layout af babyer omgivet af genstande af hver farve; Charlie's favorit var "Miss Brown" (som Jim sagt), en asiatisk pige omgivet af et væld af teddybjørne, mange større end hende. Charlie would turn back endlessly to see the photo and tape the red bowtie of one bear with exquisite attention; with finesse. Charlie ville vende tilbage en uendelighed at se på billedet og tape den røde bowtie af en bære over med udsøgte opmærksomhed; med finesse. And over, and over, again. Og derover, og over, igen. Nothing wrong with this, we thought, just a boy looking at his books—-or not. Intet galt med det, vi troede, bare en dreng at se på hans bøger - eller ej.

Will any hint “strange” or “not normal” play in a young child now set a parent (already worrying about vaccines and seeking certainty ) on edge? Vil nogen antydning "mærkeligt" eller "ikke normale" spille i et lille barn nu sat en forælder (allerede at bekymre sig om vacciner og søger sikkerhed) på kanten?

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The Dangers of Autism: Autism in America: A Perilous Diagnosis is the title for today’s story about autism over at ABC News . Farerne ved Autisme: Autisme i Amerika: En farlig diagnose er overskriften for dagens historie om autisme over på ABC News. Safety’sa more than top concern (if that’s possible) for us concerning my son Charlie; I’ve frequently noted how overly careful we are in choosing babysitters and in teaching him to walk beside us and to wait at the corner before crossing the street. Safety'sa mere end toppen bekymring (hvis det er muligt) for os om min søn Charlie, og jeg har ofte bemærket, hvordan alt for forsigtige vi i valget babysitters og i undervisningen ham til at gå ved siden af os og vente på hjørnet før passage gaden. “Stranger danger” is a concept he has yet to grasp. ABC News highlights these sorts of concerns and notes how difficulties understanding social cues can lead to misunderstandings: "Stranger fare" er et begreb han har endnu til at forstå. ABC News fremhæver den slags bekymringer og bemærker, hvordan vanskeligheder forståelse social tidskoder kan føre til misforståelser:

Autism lends itself to guileless and trusting behavior, which makes people with the disorder prime targets for abuse, thievery and scams. Autisme egner sig til guileless og tillidsfuld adfærd, der gør folk med den lidelse primære mål for misbrug, thievery og scams. According to the Department of Justice, people with developmental disabilities, including autism, have a four to 10 times higher risk of becoming crime victims and are twice as likely to be sexually abused as people without those disabilities. Ifølge Department of Justice, mennesker med udviklingsforstyrrelser, herunder autisme, har en fire til 10 gange højere risiko for at blive ofre for forbrydelser og er dobbelt så tilbøjelige til at blive seksuelt misbrugt som mennesker uden disse handicap.

Making matters worse, sexual assault crimes are already underreported. Gøre det hele værre, seksuelle overgreb forbrydelser er allerede underreported. The Rape, Abuse, and Incest National Network estimates that only 300 out of an estimated 1000 rapes that occur each day in the United States are actually documented. Voldtægt, misbrug og incest Nationale Netværk anslår, at kun 300 ud af en anslået 1000 voldtægter, der sker hver dag i USA er faktisk dokumenteres. Hampered by poor communication and language skills, people on the autism spectrum may never be able to speak out about abuse, even if they are not held back by feelings of shame. Hæmmet af dårlig kommunikation og sproglige færdigheder, folk på autisme spektrum må aldrig være i stand til at udtale sig om misbrug, selv om de ikke er holdt tilbage af en følelse af skam.

Liane Willey, who has Asperger’s Syndrome, was sexually assaulted by a police office who she had asked to escort her home and was also sexually harassed by a professor and the director of a play she was in, to the point that she became suicidal. Liane Willey, der har Aspergers syndrom, blev udsat for seksuelle overgreb af en politienhed, som hun havde bedt om at eskortere hende hjem og var også seksuelt chikaneret af en professor og direktør for en spiller hun var i, til det punkt, at hun blev selvmordstanker .

But is it the diagnosis of autism that is (as the subtitle of the ABC News piece notes) “perilous,” or that—-due to difficulties in social skills and communication—-the world that can be more “perilous” for autistic individuals? Men er det diagnosticering af autisme, der er (som undertitlen af ABC News stykke noter) "farlig" eller at der - på grund af vanskeligheder i sociale færdigheder og kommunikation - den verden, der kan være mere "farlig" for autistiske personer ?

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8 to 11 year olds who studied either piano or a string instrument for a minimum of three years outperformed children with no musical training in auditory discrimination, finger dexterity, verbal ability and non-verbal reasoning. Science Daily reports on a study published in the October 29th PLoS One . 8 - 11 årige, der studerede enten klaver eller en streng instrument i mindst tre år udkonkurreret børn med nogen musikalsk uddannelse i hørbare forskelsbehandling, finger fingerfærdighed, verbal evne og ikke-verbal argumentation. Videnskab Daglige rapporter om en undersøgelse offentliggjort i oktober 29. PLoS One.

Yes, Charlie has been practicing………. Ja, Charlie har været praktiserende ... ... ....

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